This is a personal blog of a guy who has had an intractable headache since September 7, 2011...day in day out, without relief. I also have conditions known as Intracranial Hypertension, Syringomyelia, and Hypermobility Ehlers-Danlos Syndrome, and Dysautonomia that hurt me daily and disrupt my life. These are my thoughts and adventures. In 2015 we ran off into the woods to live in a DIY off-grid solar cabin with no public utilities. This is my outlet. Read if you like.
Thursday, November 3, 2011
Headache Diary Day 57: Side Effects Include Pirate Swagger
Had a wild ride today on the Zonegran. Suffice to say I know how Jack Sparrow sees the world w/o the Rum. Headache was full-blown all day, I had all kinds of swagger (felt like sea legs), hands kept turning bleu and getting cold. After three attempts I got ahold of my Neurologist's nurse who confirmed with the doctor that I am to take no more Zonegran. It was somehow overriding the Indomethacin. What a trip...my kids were all great today though. Toughed out the school day. It is now after 6PM and the Zonegran appears to have entirely worn off. The Indomethacin is now working again and my headache has subsided. I still feel a little wobbly, but I am sure that will get better as well.
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