This is a personal blog of a guy who has had an intractable headache since September 7, 2011...day in day out, without relief. I also have conditions known as Intracranial Hypertension, Syringomyelia, and Hypermobility Ehlers-Danlos Syndrome, and Dysautonomia that hurt me daily and disrupt my life. These are my thoughts and adventures. In 2015 we ran off into the woods to live in a DIY off-grid solar cabin with no public utilities. This is my outlet. Read if you like.
Friday, February 24, 2012
Hospital Admission for "exploratory" and "therapeutic" treatment of my Trigeminal Neuralgia and constant headache.
I wanted to let everyone know that after a visit with my neurologist today regarding my constant and worsening pain, I am being admitted on Monday of next week into Ruby Memorial Hospital for at least 3 days. I will go in on Monday and hopefully be released on Wednesday. The neurologist was not happy that my pain is constant and worse by the month. He feels my current regimen of treatment should be bringing me relief...not more pain. My BP was also up at my visit today, likely due to my constant pain. This is also a concern.
On Monday they are going to perform a Thin-slice MRI, more thorough than the one I had in October at UHC. They are going to do an EEG based on some of the symptoms I am presenting, and if either of them show any oddities they are going to do a spinal tap. He says that he has no doubt based on my visits and physical examinations that he has done that I am truly in pain. He also does not doubt that I have a constant headache that has some migraine-like symptoms. That stated, he says both traditional Trigeminal Neuralgia and a migraine should wax and wane. There should be triggers and events...not constant and increasing pain. He said he wonders if my Trigeminal nerve is suffering from a state of "hyperesthesia" or an excessive sensitivity of a particular sense such as hearing, sight, or touch. He mentioned that it may not be damage to the Trigeminal Nerve, but rather something in my Central Nervous System that is causing this hyperesthesia of the Trigeminal Nerve on my right side and also of the nerves in the region where my head always aches.
Lastly, he says my visit is "exploratory" and "therapeutic". They are going to give me an IV drug called DHE-45. It is a headache abortive medicine that he says is only effective in IV form. He also says it is the strongest headache medicine that they can give in WV. They will be trying other medications as well during my stay to see if they can find something that relieves my pain or at least lessens it.
We have told Cate and she seemed to take it well. Please keep us in your thoughts next week and beyond.
Fred
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